National Organization for Rare Disorders (NORD)

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NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

About this Program

If you live with a rare disease, or love someone who does, NORD is there to help you. For more than 30 years, they have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. They are there to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases.


Phone Number


55 Kenosia Avenue, Danbury CT 06810